Tag Archives: spectrum disorder

Sorry I Ate All Your Fries–The Story Behind The Poem

A little rhyme inspired by Gustavo Caballero, Autism Tales art work.
We believe this art was created by Gustavo Caballero but he denies eating the fries….

Comic the book

Oh, just forget it
You know I cannot
Oh, you’ll regret it
I bet not
Oh, when did it happen
I remember not
Oh, just forget it
It happens a lot


We found this apology taped to an empty carton of fries– it was written on the back of the picture of the elephant.

There it remains on the back, now hanging in a frame on a wall in my room.

Other non French fry eating art by Gustavo.
Other non French fry eating art by Gustavo.

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Gustavo draws his own brand of comics.  He loves movies like Godzilla, Jurassic Park and the card game Pokemon.  Here is a page from his tribute to Godzilla along with some other amazing work.


memory

Comic the book

Sandhill Cranes
Sandhill Cranes

Divas, Chicks & Thanks by Estela Caballero, Chief Star Gazer

aEC Estela Latina BloggerI didn’t consider it a gift at the time.  When you’re at that place you know you might lose everything, you are forever changed.

Exhaustion and a darkness threaten to take up permanent residence where hope used to live.  Here’s what I know– if those things hadn’t happened, I might still be powering through all the moments that need some pondering.  I’d still be thinking rushing through the good stuff was necessary not understanding that I was missing life.  Life isn’t something that can be figured out.  It is just moments, a succession of moments that run together so fast.  Walk slow through the lovely moments.  Run your fingers over the face of one you love.  Trace the path to your dreams in the sky and don’t dare believe having your head in the clouds is a bad thing.  So often perspective begins from a distance.  The clouds offer the perfect view.

I am coming up on a year of blogging…the first four months were logging in and out of WordPress wondering if I could do it– no actual blogging ever happened. Then I came across inspiration and found the most amazing people ever–Simon, Sandra, AB and Katrina. Inspiration gave way to courage.

I realized that there will always be fear when you open yourself up to the opinion of others.  Let it go and get on with your life. You’ve got something to share with the world too.  Find your voice and let it be heard.  My greatest motivation was the desire to connect with others, especially others who may be going through something I had already been through.  Maybe my story would be the thing that made them believe things would get better– let them know they were enough.  Pretty enough, strong enough, talented enough, and enough enough.

Here are some of the many bloggers that I connected with early on.  Their words of encouragement and the window into their world has been a gift.

http://abozdar.wordpress.com/

http://squareonenotes.com/

http://katarinawohlfart.com/

https://simontocclo.wordpress.com/tag/simon-tocclo/

I invite you to explore 4utu.wordpress.com.  I share stories about my personal experience with an autoimmune disease called lupus— the gift.  Other tales are of the ongoing story of our family’s experience with autism.  Memories of growing up in a Mexican American home and migrant life are woven in with photography, poetry and artwork.

She is me

I chronicled the adventures of a chocolate eating kanga-mouse named ChocoBandido and his chick, Lola (she’s a real chick— you gotta read it for yourself).

Could

There was also that time the neighborhood cats waged war and took out a restraining order against me because they said I didn’t have a signed release to post pictures of them—-divas!

Tell me about you. How’s the view from the clouds my friend?  I’m listening.

Estela

Gustavo: Autism Tales

Thank you for following our blog. Autism Tales is just one of the stories we have to tell. We love to read your comments and hear your stories too!

Sincerely,
The Caballero Family

Autism Tales: When did this happen?

Autism Tales:  When did this happen?

Hey, I never said you could get taller than me! It happens– the funny thing is that I know they are all taller than me. Why do I still feel surprised when I see a picture like this?

He may not ever talk some said. Each day that goes by, he proves them wrong. He has autism–there is no changing that. I don’t know how he sees the world but I wish I could. He seems free of the superficial ties like worrying about what others think of our clothes or the house we live in.

He cares about things. He asks the cat if he’s ok if he hears him meow in a certain way. Sometimes Gustavo meows back. He always reminds us to buy bandaids. If someone looks sad or he thinks they are hurt, he rushes to his stash of bandaids and gets busy trying to make them better.

If he thinks something is funny, he laughs. He likes things because they bring him or someone he loves joy– not because of how much it cost or the brand. When did this happen? My son is now a young man.

Autism Tales: He gets it from me

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I am the oldest of five and both of my parents worked.  When Gustavo was born, aside from the experience I had babysitting my brothers, I was the mother of three. Gustavo would be the last baby born to me and my husband.  It was a hard delivery despite being the shortest.  He was born just three hours after the first labor pain.  He made his arrival several weeks early but he was so healthy we only had to stay a few days over the normal hospital stay.  The pediatrician agreed to let Gustavo come home on the condition she see him several times over the first two weeks in her office. He had long skinny legs and feet that my husband and I teased each other about.  We both claimed that the feet were an inheritance from the other’s family.  Laying on the bed, with him in between us, we would tickle his long feet with a full heart I’m sure all new parents feel. After the doctor said Gustavo no longer had to see her several times a week, the worry lessened.  Soon it was a remember when story.  He was now over a year old and those skinny legs were tan and strong.  He stood holding a table in the waiting room and squatted up and down but still not ready to let go.  I couldn’t wait for him to take his first step but I wanted my husband to be there for that moment.  These were the days before milestones were shared with the world an instant after they occur. The doctor looked concerned.  She was asking questions I don’t remember being a part of any well child exam for the other kids.  If something was wrong, I would have noticed.  “Does he always flap his hands like that?”, she asked.  I quickly reassured her that was normal.  “He gets so excited and that’s how he laughs.  He gets that from my husband’s side of the family.  They all have funny laughs and quirks.”  She didn’t seem convinced.  I looked at my other son, just two years older than Gustavo.  I told Mikey to laugh so she could see first hand.  He was busy with the blocks she had in a bucket by the exam table. She said he should be walking by now and wanted to have me follow up with a specialist.  “Ah”, I said, “it’s his feet.  My husband has the same feet and my mother in law said he took longer to walk than normal.  Plus his head is a little big so we think it makes it hard for him to balance.”  The doctor finished his well child exam and gave me an appointment card for the following week.  She also gave me a sheet with a list of contacts for children with special needs.  “Someone will contact you”, she said.  She smiled and asked if I had any questions. All children are different and normal child development isn’t nice and neat.  It’s a spectrum.  A word I would become familiar with.  A spectrum.  A range.  It was autism.   I was not a new mother.  How could I have missed the signs?  Walking in a grocery store or at the park, now I can spot the signs.  When it’s an especially young child, I wonder if the parent knows yet.  Gustavo learned how to walk.  Among many other things, I learned a new language. People first.  He is not autistic.  He is my son and he has autism.  Just a small change in how people refer to children with autism or any other disability does matter.  People first.  They are people first.

He is my son.  He is a great many things.  He has beautiful feet– he gets them from me.